Module Objective:

• Coaches will gain an understanding of the typical participant you’ll see in a Parkinson’s Cycling Class.

Advancing Age is the only known risk factor for Parkinson’s Disease. Most Parkinson’s symptoms occur over the age of 50 typically with an average onset at the age of 60. However, this illness can occur in younger people between the ages of 30 and 50 about 4% of the time. This is called early-onset Parkinson’s. Very rarely does it occur at a younger age.

Watch this short interview between Kathy and Sharon who’s a participant in her Parkinson’s Cycling Class

What does a typical class look like?

• The majority of the participants in the Parkinson’s Cycling Program will be over the age of 50.
• The typical Parkinson’s Cycling class will be a variety of ages, shapes, and sizes.
• Parkinson’s riders typically arrive to class early or are very punctual.
• The class will include a majority of mostly men, because men are diagnosed with Parkinson’s disease at a 50% greater rate than women.
• The class will consist of different levels and abilities.
• Some of the riders have exercised in the past, but most have not.
• The class will exude many personalities.

People from all walks of life are now experiencing this chronic disease. Since the 1900’s there have been reports that Parkinson’s patients tend to be industrious, punctual, cautious, and adverse to risk taking. They tend to be more cautious personalities.
All of these factors are important for you to understand as the program moves forward.

How do I hold a conversation with Riders who have Parkinson’s Disease?

Most people with Parkinson’s Disease do not have any cognitive impairment. But conversation can be challenging. Here are some tips for holding great conversations.

1. Hold the conversation at eye level making eye contact at all times. Sit down if the person with Parkinson’s is sitting and assume a relaxed posture to convey patience and a willingness to listen. Be clear and coherent with any questions and allow adequate time for the response. There is not any cognitive difficulty, but due to the muscle and nerve involvement, the ability to speak clearly can be compromised.

2. Avoid finishing sentences for someone who has Parkinson’s disease unless requested. Maintain good body language by nodding a “yes” and saying “I see” when understanding of a point is made. If understanding is not made clear, feel free at that point to ask for clarification or repetition. This will help avoid any misunderstandings.

3. Be aware that you might not see the facial expressions or body language you are used to seeing with able bodied people. So it’s very important to really focus on what is being said to get a clear understanding of your participant and to help ensure they feel that you are truly listening.